John at Lincoln Park Care Center

John at Lincoln Park Care Center
A Recent Photo of John

Sunday, January 11, 2015

An Update on Horizon Blue Cross Blue Shield of NJ's Shameful Denial

This is an update on the Horizon's recent denial of physical therapy.  To quickly summarize, John had a stroke on Father's Day in 2013, which affected his right side and his speech, but he worked his way back to walking with only slight limp after being given very little physical therapy because I was told Horizon Blue Cross Blue Shield of New Jersey wouldn't cover it any more.

John had another stroke on 10/26/14 which again affected his right side but his leg is much worse this time.  Although John had also been diagnosed with prostate cancer and has been going to daily physical therapy and daily radiation treatments at the same time, he has still made tremendous progress.

The problems started when Horizon started denying John's physical therapy after only a month.  John’s doctor did talk to a doctor at Horizon which got John another week of PT in mid-December.  Then before Christmas, they cancelled PT again which is when we had a first level expedited appeal which denial was upheld, followed by a second level expedited appeal conference call with two doctors and a nurse from Horizon on 12/23/14 which we won but for only two weeks; one retroactive and one through 1/5/15. 

PT was denied again on Monday, 1/5/15, so we had another first level expedited appeal followed by another second level expedited appeal by conference call on 1/7/15 but this time we lost because they said he wasn't making progress which is blatantly untrue, and that PT wasn't medically unnecessary.

That is when I started this blog post and posted it on Facebook asking my 500+ family and friends to share it with their family and friends.  I then posted this information on Horizon's Facebook page.  They sent me a message on FB twenty minutes later asking for me contact information.  I received a call from Horizon and explained the situation and was promised a call back.  

I received a call on Friday, 1/9/15 from an RN who basically repeated what was in the appeal letter, and told me that John wasn’t making progress and PT was medically unnecessary.  I now have to file a third level external expedited appeal and do not have much hope.

Since I shared this blog on Facebook, I have had numerous comments and advice from many of my family and FB friends and I have been taking their advice.  I just sent an email to the Fox Hall of Shame and I'm keeping my fingers crossed.

Thanks so much for everyone's support.

Cathy

Saturday, January 10, 2015

Shame on Horizon Blue Cross Blue Shield of New Jersey for Cancelling Physical Therapy After My Husband's Stroke

On October 26, 2014, my husband, John Krostek, suffered another stroke. John has been independent and has been self employed most of his life. He suffered a ruptured brain aneurysm on August 2, 1998 and although he had some brain damage, with physical therapy, John was physically back to himself within six months.

Everyone says John has nine lives because he has had a lot of health issues over the years but he always fights his way back. On Father's Day in 2013, John suffered from a lacunar stroke. His right side was affected and he needed physical therapy, but it was mostly his balance that gave him trouble, and after several months, John was walking with without assistance and had a barely noticeable limp.

This new stroke again affected John's right side. His arm was weak and his leg was far worse. John was in the hospital for 10 days and in mid-November, he couldn't even turn over in bed or sit up by himself. On top of all of this, John was diagnosed with prostate cancer and was just about to start 44 radiation treatments when he had the stroke.

John started his radiation treatments in November and has less than 20 treatments to go. In spite of the radiation and the exhaustion he sometimes feels, John went to physical therapy twice a day for about a month and has made dramatic progress. I visit John 2 to 3 times a week and every time I see him, I see improvement. John can now get up by himself and swivel around to get in the wheelchair. I am able to get him in my car but he can't walk even with the walker without assistance, and he hasn't been ready to tackle steps which limits where I can bring him.

A recent picture of John
Then the unthinkable happened...Horizon Blue Cross Blue Shield of New Jersey decided to cancel John's physical therapy the week before Christmas because they felt it wasn't medically necessary. Thanks for the Christmas present Horizon! I told them I would fight this so after the first level appeal was not approved, I requested a second level appeal which took place on December 23rd. I convinced two Horizon doctors and a Horizon nurse on a conference call at work that John was a fighter and that he needs physical therapy to help him walk again.

Horizon gave John two more weeks of physical therapy but one week was retroactive so he really only had about 10 more days of physical therapy. On January 5, 2015, the day after John's 57th birthday, I was again notified that his physical therapy was denied. Happy New Year and Happy Birthday to John!

Horizon ruined our Christmas and New Years holidays and John's birthday in slightly over a week! Lincoln Park Care Center filed a second, first appeal which was again not approved and I requested a second, second appeal which was again held by conference call while I was working yesterday, January 7th. One of the doctors was the same as the last time but the other doctor and nurse were different. How can they expect to understand what someone has gone through if there are different people reviewing the case every time? I got a call late yesterday that the second, second appeal was not approved and I will have to appeal by letter.

I told them that I have been paying insurance premiums for 40 years, and that I would fight this to my last breath. I also told that that I will write to my legislators, the governor, the newspapers, the Better Business Bureau, the Department of Health, and whomever else I could think of to try to help me if they do not continue John's physical therapy.

John has made tremendous progress in six weeks despite going through radiation treatments at the same time. However, John still cannot walk one step, even with a walker, without assistance. He has not been approved to try to walk up even one step because Lincoln Park Care Center doesn't think he is ready yet. He cannot get his pants, socks and shoes on himself. He is incontinent due to the radiation, and can't make it to the bathroom.

It is unbelievable that even though John has not yet plateaued with his physical therapy, Horizon has discharged him as of today, January 8th, because their brilliant medical staff feels it is not medically necessary.

When I broke my leg very badly 10 years ago, I had 16 weeks of physical therapy. Why was it medically necessary for me and not for John?

Please help me share this story. I will be posting this on my Facebook page so that my 500+ family and friends can share it with their families and friends.

After being a customer of yours for many, many years, I say, Shame on you Horizon Blue Cross Blue Shield of New Jersey!

Friday, January 9, 2015

Yesterday was by 56th Birthday...I'm Still Here

Yesterday was my 56th Birthday and I thought everyone forgot.  Well, I didn't realize that my family didn't call me because they wanted me to sleep late.  When I check on Facebook, there were over 50 birthday wishes and by the end of the day, they reached almost 100! That wasn't including all the people that liked the comment I posted, "I'm thankful on my 56th birthday that God gave me another year on this beautiful world and that I'm sharing my time here with my parents who are both healthy, my three beautiful sisters, and my husband John surviving another stroke has make me thankful that I am still healthy and able to fight his battles.  I have many other family members and friends that stay in touch through Facebook, and I'm thankful for this page that reminds me that I have a lot to be thankful for!"

The page I referred to was Grateful for the Little Things page on Facebook where I first made this post.  I had no idea so many people would respond to that too. Last night, I was eating dinner with my sister and John at the Izumi Hibachi Grill when the staff come over singing Happy Birthday.  They gave me these funny glasses that said Happy Birthday and lit up, and I put them on and laughed like crazy.  My sister Nancy took my picture which I don't usually like but I was enjoying myself so it turned out nice.  Sadly, I didn't get to keep the glasses.  The most surprising thing was that I posted a picture of myself which I very rarely do and I had a lot of comments and likes for the picture!